Showing posts with label Alzheimer's. Show all posts
Showing posts with label Alzheimer's. Show all posts

Saturday, March 19, 2022

Learning What We Don't Want to Know

Learning is largely a voluntary affair. We pursue the things we want to know and take the steps to learn them. Then there is the stuff we don't want to know. What I call involuntary learning. What does it feel like to lose a job? Undergo chemo? Bury a child? Those things that forcibly insert themselves into your life like foreclosure or violent crime. What is that like?

I found out. It was two-years ago today that I became a widower. It was the worst day of my life—and that was with the knowledge my wife's battle with early-onset Alzheimer's only had one outcome.

(Prior to that, I learned what it was like to be a twenty-four/seven care-giver. The stress and fitful sleep aside, that was only the second-hardest thing I ever did.)

You see, my wife was the most luminous soul I had ever met, and to my utter disbelief she liked me. She thought I was funny and smart and nice. Not counting the six-months or so we worked together before becoming a couple, we spent something like twelve-thousand twenty-one days together. For me, she was it.

Naturally, it wasn't all unicorns and rainbows. No marriage is. For example, frustrated one day by my bottomless enthusiasm for washing and waxing cars, she said to me (as only a wife can) “If I put the %$#@! bathroom on four wheels will you clean it then?

Yeah, she could be a pistol. More often, she was the person who couldn't continue a walk because we'd come across a rabbit who'd been critically injured by a car and who wouldn't sleep until it was attended to by a veterinarian.

Or the one who whipped up a pan of double-chocolate brownies while I was in the backyard one hot summer afternoon, attempting to clear it of bindweed.

So yes, taking care of her was a no-brainer. And to my eternal surprise, it gave me a sense of purpose I had never known. Her descent was a slow one, which gave me time to adapt to the latest round of changes. And unlike many Alzheimer's patients, her personality never altered. There was no acting out, no violence.

We were largely able to continue our lives as a couple. We continued to make our weekly trip to Jewel and go to Lincoln Park Zoo and the CSO and just be together (something which I now understood had an expiration date).

The Great Recession had kicked us down a long flight of stairs, to the point where we lived in my parent's basement. But even that misery contained a silver lining: she was next to me. Things like holding her hand, kissing her hair and having her in my arms became impossibly redolent. Decadent, even.

She was an island of comfort in a sea of shit.

Nothing changed after the onset. The here and now—having her with me—was everything.

The emotional contours of care-giving feature guilt. Exhaustion. Anger. Hopelessness. Self-doubt. Endless adjustments. Even after my wife had entered hospice, I reflexively responded to her CNA's remark that I was a good care-giver with the thought “Then why isn't she getting better?”

The cruel reality, newly reinforced, haunted me deep into the night. Tears and vodka flowed.

Yes, I was learning.

It shouldn't have been surprising that my wife, who was probably the most-intelligent person I had ever known, was still teaching me.

Then, on a damp, overcast Thursday afternoon, she was gone.

<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Death brings with it a whole new understanding of the word 'forever'.

It answers questions, such as how can survivors hand over ludicrous sums of money to people they believe can contact their loved ones?

It makes you wish for incredibly mundane things. Things like sitting next to each other watching TV. Or hearing a giggle—one last time.

Depending on your spiritual inclination, it may even challenge your notion of the afterlife. For example, even as a lapsed Lutheran, I refused to believe my wife was just...gone. How could all she said and thought and felt—all that she was—just be gone?

The answer, of course, is that it isn't. It's in me.

Lucy? You were a place.

And whenever I was with you, I was home.


Saturday, August 11, 2018

The First Summer of the Rest of My Life

In the great ebb and flow of life, I am definitely at high tide. At least if the quantity of water in that condition can be translated into Stuff That Needs To Be Done.

I am navigating the unfamiliar waters of being the primary care-giver for a sick spouse, untangling the multi-layered complexities of wills and trusts and estates and long-term care options that won't leave us penniless, especially since my employability continues to hover just north of zero.

And speaking of employment, there is the painful realization that I am the parent who should quit working because they can't afford the child care. This because through no fault of her own, my spouse requires a care-giver while I am at work. And the more I work, the more expensive it becomes.

In the most odious irony of my life, I am paying to work.

Even better, I'm too young for social security.

Just for the fun of it, I am also attempting to move from a modest condominium purchased under severe time constraints and which is an unmitigated disaster. Then there is the challenge of attempting this without it becoming an out of control, cash-sucking train wreck.

Like the Popeil commercials of yore, I must breathlessly inform you: Wait! There's more!

I have a stalker. A male co-worker who is obsessed with me. Who repeatedly hacks my computer. And who repeatedly appears just as I arrive at the garage after completing my route.

Creepy? You have no idea.

As only a sibling could, a sister inquires of me: “Who'd be interested in stalking you?”

Exactly.

To continue in the vein of vintage advertisements, I will paraphrase a nineteen-seventies TV commercial: Only my stalker knows for sure.

So yeah. Life is sucking pretty hard at the moment. And in between the medical appointments in far-flung municipalities and the estate-planning and the house-hunting and repairing the stove and the dishwasher and the plumbing and dealing with a stalker, something has to give.

And that would be the raft of sparkling and informative posts you're accustomed to seeing at The Square Peg.


  • A friend with an interest in astrology reminds me that my birthsign is the goat. And while we're rarely the first one across the finish line, we cross it with unerring regularity.


I will deal.

Baaaah.


Thursday, November 23, 2017

Thanksgiving

Amid the actual and proposed wreckage of the Trump Administration, I'm finding it a bit hard to be thankful. After repeated exposure to the Trump-whore and the self-destructive lizard brains who, blinded by their anger, know no better than to support him, I am made unspeakably joyous by term limits.

Despite the mounting evidence to the contrary, the world hasn't ended. Not yet.

There's still that sweet moment where we clock out of work and have yet to assume our domestic responsibilities. We are free. In that sweet, fleeting instant, we have both a job and unstructured time.

And in that time, we are able to enjoy this, the golden age of beer-making.

Owing to modern distribution channels, we have access to a world of fragrant nectars unimagined in my adolescence. Sam Adams' Summer Ale. Their Porch Rocker. New Belgium's 1554 and spectacular Trippel. Deschutes Black Butte Porter, Leinenkugel's reliable Sunset Wheat and Berry Weiss and Trader Joe's (!) PLZNR.

A special shout-out goes to Leinenkugel's and Trader Joe's for keeping their beers affordable—even for those of us not in the one-percent. 

Drink deeply but responsibly, my friends.

There is likewise a world of frozen food out there as flavorful as it is nutritious. Number-one are Sweet Earth's artisan bowls, meatless concoctions drawing their inspiration from points the world over. 

Best is the Moroccan Tagine. Twelveth-century traders likely dined on something very similar before they set out for India or the Far East, with the region's exotic spices (allspice, cinnamon and cloves) providing a singular mix of tang underlain with sweet.

Yes, it's vegetarian. But membership is not required for consumption.

Lastly, there is the consumable known as human companionship.

Having lost my father and mother and now shepherding my long-time mate through the ugliness of early-onset Alzheimer's, death is no longer something that happens to other people.

The death of a loved one lends a whole new meaning to words like permanent and void; one I never came close to understanding when I was young.

Those who remain take on special importance.

It might be the hoariset of clichés, but before you complain about another family gathering and the attendees bounty of annoying habits and irksome opinions, be thankful you have somewhere to go.

A group to belong to.

An invitation to answer.

It is not guaranteed to always be so.